Katie and Edward made the trip up to Philadelphia this week and had their appointment today at Wills Eye for an eye exam under anesthesia (EUA). These trips are starting to become routine to some degree, though still can be challenging. Edward cannot have any formula after midnight on these days and often wakes up pretty ravenous. Luckily, Katie has that magic motherly touch that somehow consoles a hungry baby without actually giving him a bottle.
Today's EUA revealed that both tumors regressed again!! The changes were not dramatic, but any amount of regression is absolutely fantastic news. Dr. Shields, our ocular oncologist at Shields, delivered 'thermotherapy' to Edward's tumors - a type of local therapy that helps control the growth of the tumors. Edward, Katie and Grammy Schuster then made a furious trek back to Virginia so we can get chemotherapy tomorrow at UVA. We first have to get a CBC to check his neutrophil count. Hopefully, we will above 750 and can keep moving forward!
We have to give a big shout out to Nicole, Katie's little sister and her Boston College colleagues. Nicole is organizing a fundraiser event tomorrow evening to help defray the costs of Edward's treatment. Nicole, a star athlete on the BC hockey team (all ACC!) has put together quite the party. Over 300 tickets have been sold for her event. In fact, her fundraiser was featured on a local Boston College blog! So if any of you are in Boston tomorrow night, please join Nicole and her friends at The Place on Broad Street. Thank you in advance to all the support and generosity of the BC family. I am not sure if Nicole told any of them that Katie and I are ND grads, but we both agreed that we could be Superfans, at least for a short while. Go Eagles!
Here are some pictures of Edward with an awesome cape that Edward's Aunt Lisa and Uncle Patrick made for him!
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