Over the last 2 weeks we have been playing the numbers game, and we have NOT been winning! Eddie's darn neutrophils have been bouncing all over the place, but have not yet risen about the desired 750 mark.
This is Katie by the way, so you can expect a 5th grade type explanation of things/cussing/typos/etc. hahaha. Basically neutrophils make up the largest percetange of what white blood cells are made of, and neutrophils are used to measure if the body is ready or not for the next round of chemotherapy. So we came back from Will's Eye on the 11th and went to UVA on the morning of the 12th for a CBC (Complete Blood Count). This involves me, my mom and Eddie, going to the Oncology floor where the nurses check all of his vital signs and then take a small vial of blood from his PICC line ( I don't know what that stands for, and I SHOULD! Peripheral Interarterial Central Catherter???? I am too tired to google it right now... lazy...) anyways it doesn't hurt him at all, but the blood is sent to the lab, and then we wait. and wait.... and wait...... until the lab results are back.......We expected to have fluids started and get admitted to the 7th floor, which usually happens. We have never NOT (double negative, I know I know) made counts before so we were not expecting Eddie to have a ANC (Absolute Neutrophil Count) of 730. He needs 750. Please, please, please, I beg the doctor. Nope, they said, we have to go home and wait a few days. For 20 darn cells? ahhhhhh! SO disappointed.... So me, my mom, and Eddie, packed up all 8 ( not kidding ) bags that we brought to the hospital and lugged everything out to the parking lot to go home. We were very sad and decided to take Eddie to the toy store on the "way" home and buy him 3 toys, and then..... oh, what do yo know? Sweet Frogs is next door to the toy store, so all three of us had frozen yogurt for lunch! This all happened on Thursday.
AND THEN COMES SUNDAY EVENING circa 5 p.m.
Me: I think Eddie feels kinda warm.
Mike: Yeah, me too, we should check his temperature.
Thermometer: Beep. Beep. Beep. 100.7
Me: Oh Shit. Here we go again.
Mike: Well maybe it wasn't right, lets try the other thermometer.
Other Thermometer: Beep. Beep. Beep 100.9
Mike: Well, I will call the on-call doc.
Me: I will pack an overnight bag. I know we are going to end up at the hospital tonight......
* Edward goes to bed, no tylenol allowed in case it masks a serious infection, the on-call doctor said to come straight to the ER if his temperature reaches 101.5. Thankfully, it never did, but Mike and I sat on the couch later that night and had this conversation.
Me: There are 2 more beers in the fridge. If we end up going to the hospital tonight, you and me are chugging those beers before we leave.
Mike: Screw that, I am packing them in my bag and drinking both of them myself at the hospital.
HAPPY 3 YEAR ANIVERSARY MIKE! hahaha. What a brat!
MONDAY MORNING of the 16th: Long story short, all 8 bags are packed, I haul Eddie and the riduluously packed stroller to the hospital, blood drawn, sent to lab...... 190 Neutrophils. 190????? WHAT!! They went down? UGH, obviously he is getting sick, and whatever he has is driving his white blood cells down, down, down. We had a bad feeling because of the fever, but we didn't think his counts would drop that fast....
Bring on the next weekend of waiting. Mike and I had a nice surprise Satutday morning.....squealing, playing with his toys, running all over the place! He started eating much better and drinking a little more too. Edward was even better on Sunday. We were so happy to have our Edward back, and we spent the day waiting, waiting, waiting for Monday morning, our 3rd scheduled CBC. I wrote this letter on facebook to "encourage" his neutrophils:
We will let you know tomorrow how it goes..................