Tuesday, November 8, 2011

RSV and Why We Are Staying Away From Everybody......

 I just wanted to write a little bit about RSV to explain why we are going to hibernate with Eddie for the next few months.  I feel like I already have cabin fever and I might go a little crazy this winter, but we feel like we have to be extra careful with him.  I found some information on the NIH's website for everyone to read.  Michael and I both had preemie nieces before Eddie was born, and we still didn't totally understand what RSV was, so we are just providing some information in case you think we are crazy parents!  Well, we ARE crazy parents regardless, haha, but..... just read it!!!  I highlighted some important points about RSV and preemie babies.  His pediatrician's office just called and his RSV synagis shots are finally here and he is scheduled to receive his 1st shot Monday, the 14th!  Woohoo!  Luckily, our insurance will cover 5 shots, and so he will receive one shot every month through March. Without insurance, the synagis shot costs about $1,500-2,000 per shot, so we are incredibly grateful that we are not paying out of pocket!  I also just want to say, please, please, PLEASE don't be offended if we do not invite you over to see him.  Please, please, PLEASE, do not be mad at us if we ask you to NOT bring your own little ones around him. And please, please, PLEASE do not think we are brushing you off and do not want to hang out with you anymore.... we do, I mean we REALLY do!  We would love to hang out with everyone, show him off, let him crawl around with other babies, drool on each other, etc.  AND believe ME, Michael and I (especially me) would love some more adult interaction!  We just know that this is temporary, and we have to keep him as healthy as possible during this flu season.  Next year, we will be throwing him in the mud......

Love Always,

Katie, Michael, and our little banana!




Respiratory syncytial virus (RSV)

RSV; Palivizumab; Respiratory syncytial virus immune globulin
Last reviewed: January 24, 2011.
Respiratory syncytial virus (RSV) is a very common virus that leads to mild, cold-like symptoms in adults and older healthy children. It can be more serious in young babies, especially to those in certain high-risk groups.

Causes, incidence, and risk factors

RSV is the most common germ that causes lung and airway infections in infants and young children. Most infants have had this infection by age 2. Outbreaks of RSV infections most often begin in the fall and run into the spring.
The infection can occur in people of all ages. The virus spreads through tiny droplets that go into the air when a sick person blows their nose, coughs, or sneezes.
You can catch RSV if:
  • A person with RSV sneezes, coughs, or blows their nose near you
  • You touch, kiss, or shake hands with someone who is infected by the virus
  • You touch your nose, eyes, or mouth after you have touched something contamined by the virus, such as a toy or doorknob.
RSV often spreads very rapidly in crowded households and day care centers. The virus can live for a half an hour or more on hands. The virus can also live for up to 5 hours on countertops and for several hours on used tissues.
The following increase the risk for RSV:
  • Attending day care
  • Being near tobacco smoke
  • Having school-aged brothers or sisters
  • Living in crowded conditions

Symptoms

Symptoms vary and differ with age. They usually appear 4 - 6 days after coming in contact with the virus.
Older children usually have only mild, cold-like symptoms, such as cough, stuffy nose, or low-grade fever.
Infants under age 1 may have more severe symptoms and often have the most trouble breathing.
In general, RSV symptoms include:

Signs and tests

Many hospitals and clinics can rapidly test for RSV using a sample of fluid taken from the nose with a cotton swab.

Treatment

Antibiotics do not treat RSV.
Mild infections go away without treatment.
Infants and children with a severe RSV infection may be admitted to the hospital . Treatment will include:
  • Oxygen
  • Moist (humidified) air
  • Fluids through a vein (by IV)
A breathing machine (ventilator) may be needed.

Expectations (prognosis)

Rarely, RSV infection can cause death in infants. However, this is unlikely if the child is seen by a health care provider in the early stages of the disease .
More severe RSV disease may occur in the following infants:
  • Premature infants
  • Infants with chronic lung disease
  • Infants whose immune system does not work well
  • Infants with certain forms of heart disease

Complications

In young children, RSV can cause:
Children who have had RSV bronchiolitis may be more likely to develop asthma.

Calling your health care provider

Call your health care provider if breathing difficulties or other symptoms of this disorder appear. Any breathing difficulties in an infant are an emergency. Seek medical attention right away.

Prevention

A simple way to help prevent RSV infection is to wash your hands often, especially before touching your baby. It is important to make certain that other people, especially caregivers, take steps to avoid giving RSV to your baby.
The following simple steps can help protect your baby from getting sick:
  • Insist that others wash their hands with warm water and soap before touching your baby.
  • Have others avoid contact with the baby if they have a cold or fever. If necessary, have them wear a mask.
  • Be aware that kissing the baby can spread RSV infection.
  • Try to keep young children away from your baby. RSV is very common among young children and easily spreads from child to child.
  • Do not smoke inside your house, car, or anywhere near your baby. Exposure to tobacco smoke increases the risk of RSV illness.
Parents of high-risk young infants should avoid crowds during outbreaks of RSV. Moderate-to-large outbreaks are often reported in the local news and newspapers to provide parents with an opportunity to avoid exposure.
The drug Synagis (palivizumab) is approved for the prevention of RSV disease in children younger than 24 months who are at high risk for serious RSV disease. Ask your doctor if your child should receive this medicine.

References

  1. Committee on Infectious Diseases. Modified recommendations for use of palivizumab for prevention of respiratory syncytial virus infections. Pediatrics. 2009;124:1694-1701. [PubMed: 19736258]
  2. Respiratory Syncytial Virus. In: Mandell GL, Bennett JE, Dolin R, eds. Principles and Practice of Infectious Diseases. 7th ed. Philadelphia, Pa: Elsevier Churchill Livingstone; 2009:chap158.
  3. Cincinnati Children's Hospital Medical Center. Evidence based clinical practice guideline for medical management of bronchiolitis in infants less than 1 year of age presenting with a first time episode. Cincinnati (OH): Cincinnati Children's Hospital Medical Center; 2006 May. 13 p.
  4. Mcintosh K. Respiratory syncytial virus. In: Kliegman RM, Behrman RE, Jenson HB, Stanton BF. Nelson Textbook of Pediatrics. 18th ed. Philadelphia, Pa: Saunders Elsevier;2007:chap 257.


Review Date: 1/24/2011.
Reviewed by: Neil K. Kaneshiro, MD, MHA, Clinical Assistant Professor of Pediatrics, University of Washington School of Medicine. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.
A.D.A.M., Disclaimer

Friday, October 7, 2011

Go Phillies!






Michael was not involved in this photo shoot.  It is unfortunate that he is a loyal Braves fan.  He is unaware that I am posting these pictures!  I think later in the day I might have some explaining to do.  Go Phillies!

Monday, October 3, 2011

Sophie

Soooooooo while I was shopping two months ago I saw this little giraffe sitting on a shelf in Babies"R"Us.  It struck me that I have seen this silly little toy in millions of pictures with little babies on Facebook, yes Facebook.  No one (including me) is shy when it comes to publishing adorable baby pictures online, especially when you think EVERY picture of your little one is the cutest!  I realized that I have seen "Sophie" the famous giraffe in many baby pictures this year.  I thought, why not?  Edward needs to have Sophie the giraffe too!  When the cashier scanned Sophie, I learned that she was $22!  For this silly little rubber giraffe?  Are you kidding me?  Well, okay then.....  I'll take it!  As I drove home I thought, Edward, you better LOVE Sophie!

To my dismay, Edward barely looked at Sophie the first month.  I tried to put Sophie in his hands and he would simply drop her.  I would stand Sophie up right in front of him, and he would look away and reach for another toy.  I was pretty disappointed, until about three weeks ago he started to bite her foot.  Hooray, I thought!  FINALLY!  And he still has not put her down!  Sophie can keep Edward occupied for hours!  And she helps us distract him when we have to give him his awful tasting medicines.  And she is helping his little gums feel better because he is teething!  Sophie, you were expensive, but we love you!


Monday, September 26, 2011

A VERY Hungry Caterpillar

September has been another great month for Edward.  We just returned home from the pediatrician's office for his 8th month visit and this was the first time I wasn't nervous about the weight check.  I just knew he had gained weight because he is eating food like it is going out of style and draining 5 oz bottles like we have never fed him before.  So far he has tried cereal, bananas, apples, squash, sweet potato, avocado, and carrots.  I think tomorrow we will try green beans!  I love, love, love making Edward's food using the Baby Breeza steamer/blender.  It actually is easier than I thought it would be.  I only chop the fruits and vegetables and hit a few buttons, and like magic, I have food for Edward for the week.  Today he weighed 13 lbs 5 oz and was 24 inches long. 

He does have his 1st cold, which has made me a little more worried about germs, since cold and flu season is around the corner.  He woke up Friday coughing and sneezing with a running nose.  We are hopeful this cold will just leave this house as soon as possible, as Michael and I were both sneezing and feeling a little under the weather too.  We are using the salt drops making Edward do a lot of tummy time to drain the excess junk out of his nose.  The doctor checked his lungs and his lungs sound clear.  He does have some upper airway congestion, and we were told to just keep doing what we are doing.  He did receive his first of two flu shots today, and we are anxiously awaiting the arrival of his RSV vaccine.  The shots should become available in November and he definitely qualifies to receive the shot because of his birth weight and gestational age.  The shot won't prevent him from getting RSV but it will help lessen the severity of the symptoms.... hopefully.

In other news, Edward slept through the night! Woooohoooo! And then the very next night he woke up twice, and drank two bottles.  Little stinker!  We definitely do not mind waking up to feed him, because he promptly falls right back to sleep after the bottle, so we can't complain. And he was sleeping in his big boy crib in his own room, until, that is, he starting sneezing and coughing from this cold.  He is back in the bassinet next to us for a little while longer :) or until he turns five.....

Edward loves working with the physical therapist.  Jen has taught us so many exercises to strengthen his neck muscles.  He has made so much progress in only a month's time.  He has started rolling over from his tummy to back!  He used to hate tummy time, but now that he has learned to roll over, he knows how to get out of doing it.  He is smart, just like his.......... (I will let you fill in the blank!)
 We have learned that Edward needs/wants to be held from 5:00 p.m. - 6:00p.m.- his fussy time, so we decided to put him to work.  He likes to make dinner with us!
 The almost finished product about to go into the oven- no he has not tried pizza yet!
 Cutest outfit for the fall....... of course, anything with a matching hat just makes my heart melt!
 He is getting chunky legs!
 Sitting up in his bumbo chair. 
 Gooooooooooooooooo Irish!  No turnovers........ please?
 In his beach tent during our vacation earlier this month in Kiawah, SC.
 Hanging out on the back porch, enjoying all of the new things to see.
 With Dad, on our evening walk!
Poolside! Picking up the ladies already :)

Monday, September 12, 2011

Funny Faces

                                              Wondering why I put him down to sit by himself......
                                             A little scared........
                                          Saying to himself, "This is stupid........."
                                            Blowing bubbles.............
                                                     Relaxing...........

Edward is really starting to develop his own little personality.  He is starting to squeal louder and louder when we play and he is now interacting with us more each day.  He can melt our hearts with his funny faces!  He is now 12 lbs 9 ounces!  We can't believe how big he is getting.  He tries to hold his bottle during feeding times and recently started drinking 5 ounces at a time.  Tonight he is going to sleep in his crib...... in HIS room...... NOT in the bassinet next to our bed..... any guesses on how many times I will get up tonight and walk into his room to check him? 

Sunday, August 28, 2011

Singing Out Of Tune!

August has been a wonderful month for the Johnsons!  Edward has been growing like a weed!  Last week at his 7 month visit at the pediatrician, he weighed 11lbs 14 oz!  He has been drinking 4 ounces consistently and is enjoying his oatmeal cereal each day.  We received the green light from the pediatrician to go ahead and try other foods and today he tried bananas.  I cut a banana in half and mashed it until my arm hurt, and finally it looked similar to store bought baby food.  I am not sure if he liked it, or if he was just smiling because I kept singing, "It's bananas! B-A-N-A-N-A-S!" This is Katie by the way, although Mike does his fair share of singing weird things to the baby.  Michael called home from the hospital one day and said, " I have that stupid Raffi song stuck in my head!"  Yes the singing in this house has reached new levels.

Michael, Edward and I were able to meet up with two of Eddie's NICU friends.  Eddie didn't even know he had these friends, but I became close with two other NICU moms during our hospital stay, and we vowed to have lunch one day and hang out OUTSIDE of the NICU.  And so Eddie was able to meet Sam, a former 26 weeker, and Gretchen, a former 23 weeker.  They enjoyed each other's company and I think Eddie and Sam will one day fight over who will date the adorable Gretchen.  We talked about what crazy baby music we all used at home.  Laura said that Sam really likes AC/DC.  We said we wished Edward liked other artists but he is really hooked on Raffi!  We talked and laughed until all three babies were crying and ready to leave.  It was a great experience all around for our three families as we shared stories as crazy new parents, and reminisced over our NICU memories.  We all decided that we definitely do not miss the NICU, but we did miss our NICU friends.

Edward starts physical therapy tomorrow but is making great progress already.  He is sitting nicely in his high chair and is working on sitting up in his Bumpo chair.   He is getting awfully close to rolling over and loves kicking and squealing during playtime on his jungle mat!  Most of all though, he LOVES his bath! 

Here is a video of a few of our favorite moments from the past few weeks.  It is of course accompanied by the critically acclaimed Raffi.  I don't think Raffi was nominated for any video music awards this year, but there is always next year, right?

Katie

P.S. Eddie survived his first earthquake and his first hurricane!  What a week!

Monday, August 8, 2011

A Month of Firsts

After a somewhat tumultuous June, we finally entered the month of July.  Simply put, it was a month of firsts.  As you might recall, Edward was having significant difficulty with feeding and subsequently weight gain.  We had tried various combinations of medicines, bottles, nipples, formula, positions, etc, to no avail.  Several pediatrician visits, a barium swallow, a change in our medications and a pediatric gastroenterologist appointment later, I think we might have finally made some progress.  Gone is the constant fussing and fighting with every bottle and in its place is a happy, calm baby taking a solid 4 ounces with every feed, five times a day.  Don't get me wrong, he still fusses and cries during feeds, but nothing when compared to the previous extent.  His weight gain has been steady as well.  In fact, he is nearly eleven pounds (10 lbs, 13 ounces to be exact)!

So on to Edward's firsts.....

We started out the month venturing out of the state of Virginia for the first time.  We visited my family down in Augusta!  Edward had a great time meeting his great-grandmother, aunts and uncles and cousins.

                                                          Edward with his Papa Johnson

                                                      Edward with Mom and his Granga


Edward also now sits quietly for our regular book readings.

                                                        10 Minutes till Bedtime!!


Edward is also finally nearly as big as his hungry caterpillar!


                                              As you can see, he has come a long way.


Edward also received his first Notre Dame onesie!

                                                                         Go Irish!

Edward also visited Katie's family in Ocean City, New Jersey and got to meet even more aunts, uncles and cousins!  He even made it to the beach!




Even this past week, he got to ride on his Daddy's shoulders for the first time.

                                                  Katie was barely able to breathe for this


Edward even got to try rice cereal for this first time.  He liked....having it on his face.




And yesterday, he walked!!!  Haha, just kidding, he can't even roll over yet.....  Overall, July was much more enjoyable than June and we can't wait to see what August will bring us.