Friday, March 23, 2012

Happy and Healthy Boy???

I know that this whole cancer thing has not really hit us yet in every way possible.  How? Well because we are two weeks out after his first surgery/chemo session and he is back to himself, one happy little boy.  Before his delivery when faced with the complications with his premature birth we asked the neonatologist, "Does he have the possibility of growing up to be happy and healthy?" The answer was yes and so we immediately found strength within ourselves to love and support this little boy in every way possible.  When he was faced with the ROP laser eye surgery in the NICU we knew he would lose 10-15 % of his peripheral vision in both eyes, but again we asked the opthomolagist, "Does he have the possibility of growing up to be happy and healthy?" Yes, and so we geared ourselves up and prepared for surgery.  And with the latest cancer diagnosis, we asked the oncologist the same thing, "Does he have the possibility of growing up to be happy and healthy?" We know that this might be our toughest battle, but again Michael and I are preparing for the long, crazy, ridiculous, draining journey ahead of having your baby fight cancer, because he still has the potential to be happy and healthy.  And when I said his latest diagnosis hasn't really hit us yet, it is because of the simple fact that he is STILL so happy!  He is taking medication for nausea, but other than that, he is playing like crazy around the house, making messes, smiling, laughing, imitating sounds, watching Elmo and Cookie Monster, and splashing in the tub.  If you came over the house and saw him, you would have no idea that he is sick.  He still has hair (which should start falling out soon) and he is still such a character.  And so we carry on like nothing has changed, while feeling the love and support from each of you.  We KNOW it is going to get worse, we know his hair will fall out, and he might get so sick it will hurt our hearts, but for now, we live each day in blissful ignorance of the time ahead.
Love, Katie



 The awesome sign made by his cousins Emily and Sarah.
 Going fishing.....
 Actually it's a matching memory game that Mike and I play while giving him a bath.
 Sweet smile :)
 Spring cleaning?
Getting some fresh air while Daddy uses the grill!

3 comments:

  1. I have been following your incredible journey since baby Eddie was born. I feel so happy to have seen him on the Lawn for Halloween, and each time I read about your courage, and his strength and courage and his so sweet smile, I just know that he is going to grow into one wonderful person. Because he has such wonderful parents.
    With all the hope in my heart,
    Kris Bean (Emily's mom and Lyla's grandma)

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  2. katie,
    he is AMAZING! his awesome crawl and pulling up! i am so impressed!! he is so strong and tough! and his raspberry sound cracks me up! praying for you guys in the months ahead.
    xo,
    courtney

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